Young, Sick and Invisible

My illness has shaped me,
But it does not define me.

"Yes, hello, I'd like a refund on my body. It's kinda defective and really expensive.&q


Welcome to my first blog post, very nervous as you may expect, but I'm here to express what its like living with a chronic illness.

I don't have a terminal disease, but I've been diagnosed with a complicated illness that may only get worse, and there's no cure.

I'm not lazy or faking it for attention. Some days I'm in a bad mood, but that's because I'm dealing with chronic pain mostly every day of my life. I also worry about my future.

Some days I can barely get out of bed, but I push myself out of pure guilt. I miss the 'old me' and do my best to be her again. I continue to smile through my tears and pain. It's exhausting, and it can be quite lonely too.

So please don't tell me to just 'snap out of it' or get more exercise or that I'm 'just depressed'. And please don't judge me as you have no idea what I'm going through.

Being young and sick is sort of like being elderly, except we lack the reflection on all the great times and great things we did long ago. Instead, we watch our peers make the memories and strides they'll look back on fondly, bitterly observing and praying for our chance. Our time.

Until tomorrow,

Bethany S.

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